(Syndromic Craniosynostosis – Crouzon, Apert, Pfeiffer, Saethre-Chotzen)
Craniofacial dysostosis describes syndromic craniosynostosis conditions that involves over- and undergrowth of the structures of the head and face. Children with these conditions commonly demonstrate abnormal craniofacial development requiring surgery to expand the skull and advance the facial bones. Timing of reconstructive procedures depends upon specific patient needs but typically involves cranial surgery as an infant to allow for normal neurological function and surgeries to address midfacial and orbital defects during early adolescence, timed in accordance with facial-skeletal development. Your craniofacial surgeon will work with specialists including pediatrician, speech language pathologist, child psychologist, pediatric dentist, orthodontist, physical/occupational therapist, ophthalmologist, ENT (ears, nose and throat doctor) and neurosurgeon to assure that your child receives the best possible multidisciplinary care.